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Rank: Administration
Groups: Registered
Joined: 10/19/2009 Posts: 1
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Dear Friends
Firstly I hope you all have had a good Christmas, and would like to wish you all a happy and hopefully ess painful New year, I have not been on the forum much because on the 23rd of December I went with my wife to see aa Neurologist at our local Hospital as for years she has had either extremely cold hands, arms,legs, and feet, or they have been extremely hot.
She has had this problem for years but it was only recently she was referred to the Neurologist by the Orthopaedic surgeon, on examination which included sticking pins into the above limbs he says because she could feel nothing below her elbows and knees, she has (CMT) Charcot, Marie,Tooth disease or as it is more commonly called Motor and Sensory Neuropathy.
She has been in depression since and we went to our youngest sons for Christmas day and she didn't really know much about it, and so dear friends I will try to get on the forum as often as possible but Lillian must be my main concern until all the tests have been done and as this is hereditery alll the family have to be alerted.
The first tests are at the Royal Preston Hospital for electrical tests then back to Barrow for blood and scans so the Neurologist an find which part of her nervous system is faulty, I know I can count on you my friends to think of Lillian at this time.
Thank you for reading this i'm sorry it's a long peice
Lv to you all
Albertxxxxxxxx
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009 Posts: 854
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Albert, I am so sorry to hear that Lillian is so unwell. Please give her all my love and best wishes. I may be wrong but I think that Inky's husband has this condition.
Wishing Lillian treatment which will help her feel better.
Eleanor x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 58
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dearest albert, so sorry to hear your news. my thoughts and prayers will be with you all. hope everything goes ok. god bless lynne.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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So sorry to hear this Albert. Poor Lillian, is she having treatment for her depression? Please give her my love and tell her we are all thinking of her. Yes Inky's husband has CMT.
Love, Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 74
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Hi Albert, really sorry to learn that Lillian is so unwell, I hope that the tests go ok and that they can treat her, please pass on my love, hope that you can let us know how she is getting on love Kimxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Dearest Albert,
I am so sorry to hear that Lillian is unwell and feeling depressed, poor lovey, if I can be of any help Albert please do call me.
I know you've been very unwell too and my thoughts will be with both of you.
Take Care,
Love,
Barbara XXXXXX
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Sounds nasty for you both Albert. I hope Lillian is getting some help with her depression. YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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 Hello Dear Alberto Happy Christmas to you both So sorry to see your wife suffering so with depression and newly diagnosed cmt. my dear hubby has Cmt aswell,along with his brother,father. i sent u a private message for you with details sites for uptodate information for you both. i belong to them to suport my spouse as he feels unable to use forums.he has said he will by all means give you info or through me if u so wish. alot to take on for you both now. we all react different ways with new diagnosis warm hugs to you both. lv Inky07(melly) cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Hi Albert I'm sorry to read of Lilian's problems. I hope she can get some treatment started very soon. I hope you managed to enjoy your Christmas in spite of everything.
Don't forget we will always be here if you need to let off steam, or tell us your problems.
Lyn
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 312 Location: Surrey
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Albert, I wish you and your wife the very best and hope the new year brings better fortune! Stewart. A friend is someone who knows all about you but loves you anyway!
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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So sorry to hear Lillian's news Albert. Will be thinking of you both.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Very sorry and sad to hear Lillian has CMT. I am sure Melly will be a great help with all the sites etc.
Amanda
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009 Posts: 1,035 Location: in a house
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Hi Albert Well redards to Lillian and hope she pops out of the despesion soon . well i have been to the neuroleist as well . He stuck pins in .I love it .When they get too the bottoms of your feet i wanta run i am so tickaliss i do warn i will jump . waiting for letters which have not been typed as they are 5 weeks behind as of course don,t dont know whats up .But scans have been read .Crazy crazy . Well have a numb leg and odd things now . i don,t think about it or i might sink down below so by not thinking about it i don,t worrie and guess the letter will come in Jan maybe the 2nd week i guess .So what happiens next don,t know also Athritis is ative in my skin but i remaim moblie and no pain . derimits on my face now quite bad and both types of roseasa .I know you have it as well .And PSORIASIS . I THINK OHHH LOVEY and call my self scabie ha ha christine The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 336
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Dear Albert, I'm sorry to hear your news. My thoughts and prayers are with you and your wife at this trying time. Glenys. x
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Rank: Advanced Member
Groups: Registered
Joined: 12/5/2009 Posts: 119 Location: warrington
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Dear Albert & Lillian So sorry to hear your news, it must be very hard for you both. thinking of you both all the best sue v xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 327
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So sorry to hear this news, Albert. My thoughts are with you both.
Anthea x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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Thinking of you both, take care and please stay in touch love from Liz xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009 Posts: 235
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Albert, I am so sorry. Best wishes to you and your wife.
Deb x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Sorry to hear the news about Lilian, Albert - will be thinking of you both. Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 43 Location: Burgess Hill, West Sussex
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Albert & Lillian,
I am saddened to hear of Lillian's diagnosis and can only pray that she gets whatever treatment there is quickly and without uss. I also pray that no other members of the family are affected. Do draw on the Forum members to strengthen your efforts to care for Lillian whilst at the same time cope with your RA and other problems.
Do ask the Neurologist (and your Rheumy) to support an application from you for practical help from Social Services regarding care at home help (for ironing, housework, etc). And please, make a swift application for DLA (again with the support of the two consultants). Take care my friend.
All best wishes for the New Year.Bob
A small group of thoughtful people could change the world. Indeed, it's the only thing that ever has.
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